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Title: | Facilitators and barriers to international collaboration in spinal cord injury: results from a survey of clinicians and researchers | Austin Authors: | Noonan, Vanessa K;Chan, Elaine;Bassett-Spiers, Kent;Berlowitz, David J ;Biering-Sørensen, Fin;Charlifue, Susan;Graco, Marnie ;Hayes, Keith C;Horsewell, Jane;Joshi, Phalgun;Markelis, Debora;Smith, Verna;Waheed, Zeina;Brown, Douglas J | Affiliation: | Rick Hansen Institute, Vancouver, Canada Ontario Neurotrauma Foundation, Toronto, Canada Institute for Breathing and Sleep, Heidelberg, Victoria, Australia Spinal Research Institute, Kew, Victoria, Australia Clinic for Spinal Cord Injuries, Copenhagen, Denmark Craig Hospital, Englewood, Colorado, United States European Spinal Cord Injury Federation, Copenhagen, Denmark WorkSafe Victoria, Melbourne, Victoria, Australia Institute for Safety, Compensation and Recovery Research, Melbourne, Victoria, Australia Victoria University of Wellington, Wellington, New Zealand |
Issue Date: | 2018 | Date: | 2017-07-20 | Publication information: | Journal of Neurotrauma 2018; 35(3): 478-485 | Abstract: | International collaboration in spinal cord injury (SCI) clinical research is necessary to overcome the challenges often encountered by clinicians and researchers including participant recruitment, high cost and the need for highly specialized expertise. However, international collaboration poses its own obstacles. The objective of this study was to conduct an international online survey to assess barriers and facilitators to international SCI clinical research, potential initiatives to facilitate future collaborations and the use of SCI-specific data sets and standards. Results were analyzed using descriptive statistics. 213 out of 364 total respondents fully completed the survey with the majority of these participants based in North America (38%), Asia (22%), Europe (18%) and Oceania (16%). Over half had >10 years of experience in SCI research or clinical practice (57%) and 60% had previous experience with international collaborations. Funding was identified as a top barrier (82%), facilitator (93%) and proposed future initiative (97%). Communication and technology were also identified as strong facilitators and proposed future initiatives. The International Standards for Neurological Classification of SCI were used by 69%, the International Standards to document remaining Autonomic Function after SCI by 13%, and the International SCI Data Sets by 45% of participants. As the need for international collaborations in SCI research increases, it is important to identify how clinicians and researchers can be supported by SCI consumer and professional organizations, funders and networks. Furthermore, unique solutions to overcome modifiable barriers and creation of new facilitators are also needed. | URI: | https://ahro.austin.org.au/austinjspui/handle/1/16759 | DOI: | 10.1089/neu.2017.5036 | ORCID: | 0000-0003-2543-8722 | Journal: | Journal of Neurotrauma | PubMed URL: | 28728503 | Type: | Journal Article | Subjects: | Clinical trial Traumatic spinal cord injury Spinal cord injury |
Appears in Collections: | Journal articles |
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